Exploring Resilience via Lifes Burning Issues

Tag: death (Page 8 of 8)

The saddest duty of life.

Samuel_headshot

 

In this blog I have told the story of my son Samuel… (how did I get here) and updated his journey along the way in quite a few posts. I have always been inspired by little man.

On 22nd February 2014, almost eight years after his non-fatal drowning that left him with severe disabilities, surrounded by family Samuel finally no longer able to continue his struggle, and as I held his hand and stroked his hair he took his last breath and let go of this life.

The saddest duty of life

Yesterday (7th March 2014) my family performed the saddest duty of life. Laying my little man to rest.  Prior to this we held a Celebration of his life. My family was humbled by the attendance of over 400 people at the celebration, and around 200 that attended his funeral, as well as the many messages from all over the world.

My eulogy for my little man…

These are the words I shared with those that joined us to Celebrate Samuel’s life and joined with us at the funeral.

“When my heart is breaking, and I am missing the presence of Samuel how do I pay tribute to a little man who has taught me so much?

Dr Seuss is claimed to have said  “Don’t cry because it’s over, laugh because it happened”

 It might seem like a strange thing to say while we have been shedding many tears and will continue to do so, but I want to focus on the things that we can laugh about, and smile about as we remember Samuel now and always.

 I will always carry with me the laughs and smiles of putting the key in the front door of our house and hearing Samuel come hop skipping down the hallway with a gleeful DAAAADDYYYY. Of having him leap into my arms, give me a cuddle and then immediately wriggle his way down only to take off and return to whatever it was he was doing.

 I will forever remember Samuel, from no matter where in the house he was, running into the lounge room and standing in front of the TV as soon as he heard the Simpsons theme, and his outrageous laugh as the Simpson family crammed onto the couch, and again as soon as the intro theme was over.. off he went to do whatever he was doing as he didn’t really care about the show just the intro.

 I will remember the times Samuel would wait patiently at the start of a Pixar movie, quiet and still until the little lamp jumped up and down on the big lamp, and Samuel would jump up and down in time with squeals of laughter.

 I will remember the times when Samuel would go very quiet while he was playing and I’d think where is the cheeky little monkey… Only to find him on the lounge down the back with his bum in the air and his head buried under a lounge cushion.. Sound asleep.

 I will remember Samuel fishing, showing great patience… until he decided to bang the rods on the side of the boat and when told to stop just casually looked up and then dropped the rod over the side of the boat (and did it a second time… but with his sisters rod) 

Even when I think of things after his accident I will remember him always doing things his own way. right up until his last breath. If someone predicted something about him.. he would not let that define him. From the start of his accident when they said he probably wouldn’t make the night, and he did…. when they took him off the respirator days later and told us he probably wouldn’t breath on his own and he did… when we went to Bear Cottage in March last year with the news that Samuel was not expected to make it through the weekend.. and he did for another eleven months.. all on his own without the respiratory support that he had needed for a couple of years…. 

 Samuel that was one LONG weekend! 

Even as we arrived at Bear Cottage for the last time with Samuel, he chose his timing, waiting until things had settled down and he was surrounded only by family, and then as I held his hand and stroked his hair he took his final breath and let go of this life.

Not long after Samuel’s accident in a moment of despairing about how we would look after Samuel and what would become of him a work friend said to me   “ unlike almost all of us, what you can now count on is that Samuel will ALWAYS be surrounded by people that love and care for him”.  

I did not know at the time how true that comment would be. Yes he was always surrounded by our family that loved him, but he has also been surrounded by many many people that have shared our love for him and helped to take care of him. 

From his pre-school teachers at Wishing Well that welcomed Samuel back with open arms and hearts after his accident and went on a steep learning curve with us, to the teachers at his big school Kurambee for as long as he was able to attend… to the Doctors and Nurses and other staff and volunteers at the Childrens Hospital at Westmead, to the wonderful nurses,staff and volunteers at Bear Cottage. We can never fully express our thanks to you for embracing our little man, loving and caring for him exactly the way that we wanted him loved and cared for. I know that Samuel has touched many of you and I am glad that some of you were able to join us to celebrate Samuel’s life.

I will never get to know the man that Samuel would grow to become, and my life will always be poorer for that, but Samuel is and always will be my little man.

There is a Poem called the “The measure of man” that begins 

 “Not how did he die, But how did he live,

Not what did he gain, But what did he give

these are things that measure the worth,

of a man as a man, regardless of birth”

In his ten short years Samuel has touched many hearts and minds around the world. We have been inundated with messages from New Zealand, the USA, UK, Ireland, the middle east, South Africa, Sweden and other parts of Europe, from people whose lives had been touched by Samuel in some way.  

Samuel’s story, his strength, his tenacity and his courage through all he has faced has been shared through the work of the foundation created to honour him, the Samuel Morris Foundation. His story has been shared with Learn to Swim and Water Safety teachers, lifeguards, Life Saving Organisations and Doctors through conference presentations in Australia, Ireland, Germany and New Zealand as well as online. With many people sending comments after these events about how much Samuel had impacted on them personally, and how they would be thinking about their work differently as a result.

On Sunday 2nd March, one of those touched by Samuel, the mother of another child living with disabilities after a near drowning organised a balloon release event to be held for Samuel, this was shared via Facebook and again we were amazed at how far and wide the photos of the balloon release came from and the heartfelt messages that people sent with the balloons and photos, many from people we have never had the opportunity to meet, but who were touched by Samuel.

Sharing Samuel’s story has given me the chance to explore subjects, to go places and to build relationships with amazing people that I would never have had the opportunity to do so if it was not for my little man and the strength and tenacity that he put into his almost eight year fight for life.

Samuel has given so much strength, courage and inspiration in his ten short years, there are many of us that can live a long full life and never manage to touch and influence so many people across such a vast distance.

I will never get to know the grown up man that Samuel could have become… but I know that I am a better man because of Samuel’s influence on my own life.

Don’t cry because it’s over, laugh because it happened…..So yes…in time, I will not cry because Samuel’s life here on earth is over, I will laugh because his life happened …. it is not goodbye to my little man, because I will always carry him in my heart.. so for now… it is see you again some time Samuel.”

 

About death and dying

About Death and Dying

Death and dying are something that ALL of us will confront at some point in our lives… it is an unavoidable consequence of the human condition.

Thinking about what constitutes a good death and having the discussions about that are sadly a part of my life in caring for one of my children (see how did I get here, real mean can and should cry) We have had to have conversations around palliative care, about where (if there is any choice at the time) our son should spend his last hours/days and how much care can and  will be provided when this time arrives.

What is a good death?

The issue of a good death and the discussion around it is often one that ignites great passions from people from various perspectives.

A series exploring the subject of death and dying

This subject has recently been featuring over at The Conversation

So I am simply going to share the links to the articles they are publishing, and encourage you to think about death and dying and keep on open mind and contemplate the varying perspectives on offer,

Part 1 – Deadly Censorship Games

This post looks at the issue of euthanasia and the coverage of this issue within the media and the censorship surrounding it.

Part 2 – End of the care conveyor belt – death in Intensive Care Units

This post looks at the increasing likelihood that people will spend their last days in an intensive care unit and some of the implications around this.

Part 3 – Caring or Curing – the importance of being honest 

This post looks at the issue of providing care from the point of view of an oncologist

Part 4 – Death and despair or peace and contentment – Why families need to talk about end of life options

A case study and exploration of a situation that many families will be faced with.

Part 5 – Body or Soul: Why we don’t talk about death and dying

A look at some of the ethics and perspectives of people involved in the process.

Part 6 – Advanced Care Directives

A look at legalities, processes and issues around planning for how you or someone you care for should be cared for towards the end of life

Part 7 – A personal account of life with Terminal Cancer

 

The title to this one is self explanatory.

Other places where the conversation is happening

The ABC in Australia recently published a piece by well known and respected journalist Quentin Dempster titled “Do you have a right to die”. This is a detailed piece that includes a few case studies, but also includes perspectives from people like the former NSW Director of Public Prosecutions and how issues of assisted death have been handled constructively and passionately, in some cases despite the apparent intent of the law.

Death and Dying – A buddhist perspective

If you have read a few other posts on this site you will note that they often include thinking that is influenced by something of a Buddhist perspective (although I don’t claim to be a practicing Buddhist.. or practicing anything else for that matter!) There is a wealth of information and thinking about death and dying within the Buddhist tradition, but I have to say thanks to a reader of this blog Kate Bacon for pointing me in the direction of  Death and Dying a site that explores the subject from a purely Buddhist perspective.

What does it all mean?

Each of the links that I have provided will provoke a range of thoughts and feelings…

I would encourage you to think long and hard about death and dying because as I said above you WILL be faced with a choice around the issues of death and dying at some point in your life…

 

I’ll add updates to this post from time to time…. but what are your thoughts on what constitutes a good death?

 

 

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